Joyce speaks with people who attended the VHL Conference in Houston last June. For some, it was their first such meeting.
In addition to the expense and time commitment of going to a conference about your disease, there are always emotional barriers to cross -- Will it be a downer? Will I be upset? Will the people I meet be so sick I will be terrified?
Please join the conversation and ask your own questions about whether it was worthwhile to make the trip, meet other people dealing with your disease, and meet the physicians and researchers working to find a cure.