Empowering people with complex medical conditions and disabilities.

Do you feel helpless in the face of “the system?” We are here to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. Share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

Managing the System

Teaching Visually Impaired Students in Public Schools


Arlene Hernandez, a retired TVI, talks with Joyce about the joys and challenges of teaching visually handicapped students in the public schools.

Kaelin wins a Nobel Prize!


Harvard doctor among trio of scientists jointly awarded Nobel Prize in medicine for their work identifying how cells adapt to changes in oxygen levels.

Cancer Biology and Dr. Copland’s Lab


Cancer is a complex disease, and no one knows this better than Dr. John “Al” Copland, who has made cancer research his life’s work.

Access and Care for People with Disabilities


The US’s disability social safety net is profoundly broken, says Anna Landry, a handicapped student at Georgetown University.

Kidney Cancer patient experience in North Carolina


Conversation with Ann and Chris about their experiences

Myeloma Patient Rockstar: Cindy Chmielewski


We learn some interesting things about multiple myeloma.

Rebecca Esparza campaigns for Ovarian Cancer


Rebecca speaks for all women with ovarian cancer, including those taken from us too soon.

Fighting Colorectal Cancer by understanding your risk factors


Wenora Johnson shares her story — surviving cancer 3 times, she is passionate about understanding your biomarkers.

Susie Brain, a survivor of breast cancer, works with researchers to find a cure


Susie Brain speaks with Mike, Robin and Joyce about her work as a survivor and advocate with breast cancer.

Colorado hosts 25th Annual VHL Family Conference


I was privileged to attend the 25th Annual VHL Family Conference in Colorado this past weekend.  It was a wonderful meeting.  Kudos to Dr. Nicholas Cost and the University of Colorado for their teamwork in serving people with VHL.

Exploring Your Genome


Max McCoy speaks with Joyce about his recent personal adventure, exploring the depths of his own genome — an ongoing adventure worthy of some of his fictional heroes, with unexpected twists and turns, sometimes more information than you know what to do with.

Managing Small Renal Masses – Patient Survey


Debra Gottsleben and KCCure surveyed patients with benign renal masses and reported findings to the American Urological Association.

Powerful Patient meets Youth Services


Joyce Graff appeared on Talk it Out with Father Don Mowery on the radio in Memphis. They have a lot in common. It’s all about empowerment.

Developments in Renal Medullary Carcinoma

Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.

Managing Your Health

International Kidney Cancer Coalition (IKCC)

Meet Marta Szulc (say "Shultz") Marta Szulc First Ever Executive Director IKCCClinical Trials information Graphics make it easy to understandGlobal network of patient support organizationsWorld Kidney Cancer Day June 17, 2021 Be sure to create your own Personalized...

Why We Do the Things We Do


Bob Raleigh talks about his research into why we do the things we do. He describes how doctors and counselors can shape their messages in order to be heard.

COVID-19 and Participatory Medicine


Author Michael Millenson speaks with us about how people with complex medical conditions need to work with their doctors to manage the risks of COVID-19.

CDC Guidelines for Fully Vaccinated People

Dolly Parton gets vaccinated against COVID-19 at Vanderbilt University Medical Center in Nashville.Kareem Abdul-Jabbar NBA Hall-of-Famer gets vaccinated. "We need to learn new ways to keep each other safe."Everyone who is medically eligible should get...

World Cancer Day: effects of COVID-19 on cancer patients


On World Cancer Day 4 Feb, GCCN is hosting an online event to examine the effects of COVID-19 on cancer communities and the innovative strategies that help.

Wellness and Resilience through Integrated Health


Dr. Daniel Monti speaks with Joyce Graff and Megan Conley about his new book, Tapestry of Health, providing guidance on supporting your own wellness and resilience.

Clinical Trials in the time of COVID-19


Joyce and Robin speak with Dr. David Gerber of UTSW about the changes that have been made to keep clinical trials going and patients safe during the COVID emergency.

When will we have a safe vaccine for COVID-19?


Dr. Ofer Levy leads a group of scientists working to develop vaccines that are safe and effective for people of all ages and ethnicities.

How One Community is Containing COVID-19


In an interview with Dr. Swannie Jett, Commnr of Public Health for Brookline, Mass., we learn how a town of 60,000 people is keeping COVID-19 under control.

Polio SWAT team tackles COVID


Since March 2020, the worldwide team working on Polio has been repurposed to work instead on COVID-19. 

Managing Your Life

International Kidney Cancer Coalition (IKCC)

Meet Marta Szulc (say "Shultz") Marta Szulc First Ever Executive Director IKCCClinical Trials information Graphics make it easy to understandGlobal network of patient support organizationsWorld Kidney Cancer Day June 17, 2021 Be sure to create your own Personalized...

COVID-19 and Participatory Medicine


Author Michael Millenson speaks with us about how people with complex medical conditions need to work with their doctors to manage the risks of COVID-19.

Rare Disease Day Events


While horses are more common, zebra do exist. People with rare diseases deserve a diagnosis and fair access to care. Come and learn.

Wellness and Resilience through Integrated Health


Dr. Daniel Monti speaks with Joyce Graff and Megan Conley about his new book, Tapestry of Health, providing guidance on supporting your own wellness and resilience.

COVID: The Real Science


Five experts meet to discuss COVID-19, how to end a pandemic, and how to protect ourselves while it is with us: Masks, Testing, Vaccines, and keeping safe.

COVID Online Schooling for the Visually Impaired


Sue Buckley of Knoxville has been helping blind young people to gain the skills needed to succeed at online learning. Hints for parents and teachers.

Staying Sane in Quarantine


How to manage your stress in quarantine with the underlying conditions that were already there?

Coronavirus – the New Normal


Robin Martinez and Joyce Graff talk about the coronavirus and how to protect yourself in these exceptional times.

Mental Health and Destructive Behavior


Depression can lead to many dangers, including addiction, suicide, and various forms of self-harm.

Access and Care for People with Disabilities


The US’s disability social safety net is profoundly broken, says Anna Landry, a handicapped student at Georgetown University.

Susie Brain, a survivor of breast cancer, works with researchers to find a cure


Susie Brain speaks with Mike, Robin and Joyce about her work as a survivor and advocate with breast cancer.

Genes and your health


We here at Powerful Patient have a strong interest in family health history, and helping people and communities understand how genetic testing can improve health.

Awareness of Pancreatic Cancer

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awareness-of-pancreatic-cancer

On Tumor Development and Diagnostic Imaging


Mike shares from The Emperor of All Maladies on the development and progression of Lung Cancer, and talks with Joyce on Radiation exposure from Diagnostic Imaging.