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Many women experience fibroids in the uterus. In some cases, fibroids can be one signal of a set of issues called a “syndrome” that includes additional risks. Joyce speaks with Julie of the of the HLRCC Alliance about syndromes that include fibroids. Julie also shares her story of finally arriving at a diagnosis of Reed’s Disease, or HLRCC.
For more information about HLRCC, please see http://hlrccinfo.org
To contact Julie and her committee send your email to hlrcc@vhl.org.
Or, join the conversation by going to http://vhl.inspire.com.
