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In the last year there have been several new articles that add greatly to our understanding of a rare form of kidney cancer, Hereditary Leiomyomatosis and Renal Cell Cancer.
Joyce speaks with Graham Lovitt, Chairman of the HLRCC Family Alliance, moderator of the international support list for HLRCC, a private list on Facebook, and webmaster of http://hlrccinfo.org To ask to join the group please write to the contact page on hlrccinfo.org.
The primary resource for families and physicians is the HLRCC Handbook, compiled by the HLRCC Family Alliance to help patients and their physicians work together to manage their health.
Graham is also a leader of the VHL UK/Ireland branch of the VHL Alliance International.
