We are thrilled to announce the opening of the first-ever global kidney cancer survey, sponsored by the International Kidney Cancer Coalition (IKCC.org). This survey has been designed by a collection of patient organizations worldwide. It is the first-ever international survey that will build a global picture of what it’s really like to experience kidney cancer, country by country.
If you or a loved one has or had kidney cancer, We need to hear from you!
People with kidney cancer and their caregivers are invited to fill out the brief survey, which will take only 10-15 minutes to complete. You will be helping us all gain a better understanding of the different issues patients deal with around the world on a day-to-day basis. With this information, we will be better equipped to advocate for change to help improve the lives of kidney cancer patients everywhere.
In the United States Powerful Patient is working with other kidney cancer support organizations to support this survey. You will see postings in social media from several organizations in the United States and other countries asking you to participate. You can respond through any of our requests … there is no competition, rather we are cooperating toward this common goal.
Our goal is to reach 100 completed surveys by September 15, and keep adding more through the end of September. Let’s see how many responses we can accumulate! The more people we hear from, the better the information we will gain.
We are participating in this global kidney cancer survey to highlight the real world experiences and challenges of patients and their families, in the United States and worldwide.
The IKCC will compile a report for each country that achieves their goal, as well as the global report. We will report the results on the Powerful Patient.
Other cooperating organizations: (contact us to add your organization to this list – info@powerfulpatient.org)
- Judy Nicholson Foundation
- KCCure.org
- SmartPatients.com
- VHL Alliance (vhl.org)
Fill out the survey here…
Share it with your friends who have experience with kidney cancer.
Thank you!
