JoyceGraff | Powerful Patient

Living with Multiple Myeloma

Posted by JoyceGraff | Apr 4, 2016 | Empowering Yourself, Multiple Myeloma, Podcast |

Jack Aiello has been living with multiple myeloma since 1995. Joyce and Robin talk with him about patient empowerment.

What Can We Do About Drug Prices?

Posted by JoyceGraff | Mar 22, 2016 | Healthcare Systems and Insurance, Managing the System, Podcast |

Joyce and Robin speak with Abbey Meyers, founder of the National Organization for Rare Disorders (NORD), about her new book Orphan Drugs: A Global Crusade.

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Should I worry about Gadolinium?

Posted by JoyceGraff | Mar 15, 2016 | Podcast, Radiology pros and cons |

Joyce and Robin talk with Dr. Richard Samelka, who is involved in investigations into the long-term effects of the use of gadolinium.

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Shortening the Time to Treatment

Posted by JoyceGraff | Mar 8, 2016 | Cost of drugs and treatment, Empowering Yourself, Healthcare Systems and Insurance, Podcast |

Robin and Joyce speak with Zoe Barry of ZappRx, a secure online platform allowing patients, physicians and pharmacists to improve patients’ access to treatment.

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ALDconnect – you are not alone

Posted by JoyceGraff | Mar 1, 2016 | Adrenal Leukodystrophy (ALD), Finding others with the same challenges, Podcast |

Following her son’s diagnosis with X-linked adrenoleukodystrophy (ALD) Kathleen O’Sullivan-Fortin took an active role as patient advocate for her son.