Author: JoyceGraff

Talking with Joyce Graff

Posted by JoyceGraff | May 10, 2022 | Managing Your Health, Podcast |

Host Harvey Bravman focuses on her work with Powerful Patient, empowering people to partner with their health care providers and manage their own health.

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Fighting for his Life

Posted by JoyceGraff | Sep 29, 2021 | Blog |

A rare brain tumor is threatening his life. Can we find help in time? Can you help?

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Then and Now – VHL Alliance in 1994 and 2021

Posted by JoyceGraff | Sep 22, 2021 | Advocating for Yourself, Managing the System, VHL von Hippel-Lindau |

Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement.

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Bruising? Bleeding? Lightheaded standing up? Heart Racing? Consider POTS

Posted by JoyceGraff | Aug 11, 2021 | Conditions, Coronavirus, COVID-19, Immune System Issues, POTS |

Positional Orthostatic Tachycardia Syndrome (POTS) is a multi-system conditions that are very tricky to diagnose. It may be an auto-immune disorder.

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International Kidney Cancer Coalition (IKCC)

Posted by JoyceGraff | May 10, 2021 | Caregiving, Clinical Trials, Kidney Cancer |

Meet Marta Szulc (say “Shultz”) Marta Szulc First Ever Executive Director IKCC...

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