Help Wanted – Adoptive Parents for Children in Foster Care Posted by JoyceGraff | Jan 19, 2016 | Love, Marriage, and Children, Podcast | Diane Tomaz of the Massachusetts Adoption Resources Exchange (MARE) talks about adoption and the needs of the children waiting in foster care. Listen Read More
Patient Information – new info for VHL Posted by JoyceGraff | Jan 5, 2016 | Podcast, Teamwork with doctors, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | Discussion of how the VHL Handbook helps both patients and doctors, and the power of sharing information — among patients and physicians worldwide. Listen Read More
Who is Listening to the Patient Voice? Posted by JoyceGraff | Dec 17, 2015 | Getting a Diagnosis, Podcast, Teamwork with doctors | Lesley Bennett, state coordinator for NORD in Connecticut, speaks about the role of the consumer in medical organizations. Listen Read More
Should I go to a Patient Support Conference? Posted by JoyceGraff | Dec 17, 2015 | Empowering Yourself, Finding others with the same challenges, Metabolic disorders, Podcast | What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? Carla talks about her recent experience. Listen Read More
Patients and Physicians Network about Kidney Cancer Posted by JoyceGraff | Nov 24, 2015 | Access to healthcare, Africa, Developing Local Medical Resources, Podcast | The Kidney Cancer Association’s annual symposium for physicians included more patients this year, adding a rich dimension to the affair. Listen Read More
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