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Allison Mayoral and Anneliese Wilson of the Pancreatic Cancer Action Network (PanCAN.org) speaks with Mike, Robin, and Joyce about pancreatic cancer. In her role as Patient Services Manager, Allison works to provide comprehensive informational service and to inspire hope through resources. Anneliese, one of the Associates, recently presented a poster at the AACR meeting on healthcare disparities where she met Mike Lawing.
PanCAN promotes and support research into this third leading cause of cancer-related death in the United States.
PanCAN’s Patient Central adheres to five basic principles in guiding callers:
See a Specialist. It is critical to consult with specialists who diagnose and treat a high volume of pancreatic cancer patients. Patient Central can provide a list of specialists in the caller’s area.
Determine the Best Treatment Options. Every tumor is different. Callers can learn which treatments may work best for them through molecular profiling, determining the cell type of the tumor to determine what treatment might give the best response.
Consider Clinical Trials. Clinical trials should be considered during every treatment decision, including at diagnosis. A Patient Central Associate can help callers start their search.
Maintain Quality of Life. Supportive or palliative care, good diet and nutrition, and connecting with others will all aid in this.
Help Accelerate Research. The Patient Registry is a database created to look for patterns in treatments, side effect management and diagnostics that will lead to improved outcomes for pancreatic cancer patients — powered by patient and caregiver
For more information, see
http://PanCAN.orgThe patient discussion group at SmartPatients.com may also provide helpful resources and support.
