Carin J. Cornish, Esq.

Cari with her younger son Dylan

her daughter Jessie who lived with Sanfilippo syndrome to the age of 13

Reed Zeighami, a child with Sanfilippo syndrome

Joyce Graff, Powerful Patient

Carin J. Cornish is an attorney. She specializes in Special Education Law — not the most lucrative specialty in law practice, but one which she find extremely rewarding in other ways. All children have their own ways of learning, not all of which fit neatly into mainstream classrooms. Cari is committed to helping to create the right nurturing environment for every special child. She works through the Children’s Law Center of Massachusetts.

Cari talks with Joyce about the path that has led her to this specialty, and to her work with the New England Regional Genetics Group (NERGG).

Sanfilippo syndrome was first described in 1963 by Dr. Sylvester Sanfilippo and is considered rare, with an occurrence of 1 in every 70,000 births. It is an autosomal recessive hereditary disorder, which means, both parents must be carriers in order for the child to be affected. There is a one in four chance of having a child born with Sanfilippo syndrome. There is a two in three chance that unaffected children will be carriers.

The Federation for Children with Special Needs
http://fcsn.org

The Children’s Law Center of Mass
http://www.clcm.org/helpline.html

Special Needs Advocacy Network
http://www.spanmass.org/index.html