Birth defects | Powerful Patient

Reducing Infant Mortality in the United States

by JoyceGraff | Sep 9, 2015 | Birth - premature, Birth defects, Conditions, Podcast | 0 |

What can we do to lower the incidence of infant deaths? Dr. Robert Ford, a retired OB/GYN from W Memphis, AR, now living in Memphis TN, shares his insights.

Listen

Listening, Reflecting, Healing

by JoyceGraff | Mar 11, 2015 | Birth defects, Genetic Testing or DNA Testing, Podcast | 0 |

Mike and Joyce speak with Mary-Frances Garber, a genetic counselor who provides Supportive Genetic Counseling, complementing what is traditionally offered in medical centers.

Listen

Going outside your comfort zone for medical care

by JoyceGraff | Dec 18, 2014 | Birth defects, Heart disease, Podcast, Travel | 0 |

Mike and Joyce chat about the adventure of going outside your comfort zone for medical care.

Listen

Braeden’s Challenges

by JoyceGraff | Mar 1, 2014 | Advocating for Yourself, Birth defects, Blog, Empowering Yourself, Finding others with the same challenges, Healthcare Systems and Insurance, Promoting Research, Rare Diseases, Teamwork with doctors | 0 |

Ray Flynn, former Mayor of Boston, fights with passion for his grandson’s health and quality of life. Braeden has a rare condition that presents him and his family with significant challenges.

Read More…

What is Prune Belly Syndrome?

by JoyceGraff | Jun 6, 2013 | Advocating for Yourself, Birth defects, Caregiving, Podcast, Prune Belly Syndrome | 0 |

Prune Belly Syndrome (PBS) or Eagle-Barrett syndrome is a group of birth defects including urethral malformation. We talk with four volunteers working to raise awareness of PBS.