Conditions | Powerful Patient

Virtual Summit focuses on Better Education for Children with Disabilities – Oct 25

by JoyceGraff | Oct 13, 2024 | Access to education, ADHD, Autism, Brain Injury | 0 |

The Rotary Club of World Disability Advocacy proudly sponsors a virtual, free, all-day Inclusive...

Finding Fulfillment in Giving Back to Others

by JoyceGraff | Oct 10, 2023 | Blog, Finding others with the same challenges, Managing Stress, Rett Syndrome | 0 |

Safe in AmericaSofiia, Yulia, Ivan and Joyce Click Here Thanking RotariansDiana, Joyce, Yulia, and...

Breathing Problems? Consider SubGlottic Stenosis (SGS)

by JoyceGraff | Dec 5, 2022 | Conditions, Getting a Diagnosis, Managing Your Health, Podcast, SubGlottic Stenosis (SGS) | 0 |

Catherine Anderson has prepared a Rough Guide for patients to help with SubGlottic Stenosis (SGS), or scar tissue in the trachea constraining breathing.

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Understanding and Managing Post Polio Syndrome

by JoyceGraff | Dec 4, 2022 | Podcast, Polio, Understanding your Risks | 0 |

Ina Pinkney, the Breakfast Queen of Chicago, joins Joyce Graff to speak about Post Polio Syndrome, which can impact someone who survived polio.

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Then and Now – VHL Alliance in 1994 and 2021

by JoyceGraff | Sep 22, 2021 | Advocating for Yourself, Managing the System, VHL von Hippel-Lindau | 0 |

Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement.

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Bruising? Bleeding? Lightheaded standing up? Heart Racing? Consider POTS

by JoyceGraff | Aug 11, 2021 | Conditions, Coronavirus, COVID-19, Immune System Issues, POTS | 0 |

Positional Orthostatic Tachycardia Syndrome (POTS) is a multi-system conditions that are very tricky to diagnose. It may be an auto-immune disorder.

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International Kidney Cancer Coalition (IKCC)

by JoyceGraff | May 10, 2021 | Caregiving, Clinical Trials, Kidney Cancer | 0 |

Meet Marta Szulc (say “Shultz”) Marta Szulc First Ever Executive Director IKCC...

Help for Teens with Migraines

by JoyceGraff | Apr 22, 2021 | Headaches, Migraines, Podcast | 0 |

https://powerfulpatient.org/wp-content/uploads/2021/04/mcvige-140.png

Dr. Jennifer McBige helps us understand what makes migraines different, and new non-drug treatment options including one approved for teens.

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COVID-19 and Participatory Medicine

by JoyceGraff | Mar 31, 2021 | Coronavirus, COVID-19, Pandemic, Podcast, Wellness and Living with a Difficult or Rare Condition | 0 |

Author Michael Millenson speaks with us about how people with complex medical conditions need to work with their doctors to manage the risks of COVID-19.

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CDC Guidelines for Fully Vaccinated People

by JoyceGraff | Mar 8, 2021 | Conditions, Coronavirus, COVID-19, Managing Your Health, Vaccines | 0 |

Dolly Parton gets vaccinated against COVID-19 at Vanderbilt University Medical Center in...

Rare Disease Day Events

by JoyceGraff | Feb 24, 2021 | Blog, Empowering Yourself, Rare Diseases | 0 |

While horses are more common, zebra do exist. People with rare diseases deserve a diagnosis and fair access to care. Come and learn.

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World Cancer Day: effects of COVID-19 on cancer patients

by JoyceGraff | Feb 1, 2021 | Blog, Cancer, in general, Coronavirus, COVID-19, Managing Your Health | 0 |

On World Cancer Day 4 Feb, GCCN is hosting an online event to examine the effects of COVID-19 on cancer communities and the innovative strategies that help.

Category: Conditions

Virtual Summit focuses on Better Education for Children with Disabilities – Oct 25

Finding Fulfillment in Giving Back to Others

Breathing Problems? Consider SubGlottic Stenosis (SGS)

Understanding and Managing Post Polio Syndrome

Then and Now – VHL Alliance in 1994 and 2021

Bruising? Bleeding? Lightheaded standing up? Heart Racing? Consider POTS

International Kidney Cancer Coalition (IKCC)

Help for Teens with Migraines

COVID-19 and Participatory Medicine

CDC Guidelines for Fully Vaccinated People

Rare Disease Day Events

World Cancer Day: effects of COVID-19 on cancer patients

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