Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement.
Max McCoy speaks with Joyce about his recent personal adventure, exploring the depths of his own genome — an ongoing adventure worthy of some of his fictional heroes, with unexpected twists and turns, sometimes more information than you know what to do with.
Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.
Robin and Mike have a discussion about their current activities in healthcare advocacy, and how advocacy can be beneficial to persons dealing with personal challenges in medical conditions
Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.
Robin and Joyce speak with Nancy Finn to recap the experience of the conference, and to speak more in depth about patient engagement in their own healthcare.
Joyce talks with Carin J. Cornish, an attorney specializing in Special Education Law. Cari is committed to creating the right environment for every child.
Cindy Coney is full of hope, inspiration and an unsinkable spirit that she loves using to help others affected by life challenging illness live better lives.
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Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.
Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.
Listen
