Clinical Trials | Powerful Patient

International Kidney Cancer Coalition (IKCC)

by JoyceGraff | May 10, 2021 | Caregiving, Clinical Trials, Kidney Cancer | 0 |

Meet Marta Szulc (say “Shultz”) Marta Szulc First Ever Executive Director IKCC...

Clinical Trials in the time of COVID-19

by JoyceGraff | Sep 17, 2020 | Clinical Trials, Podcast | 0 |

Joyce and Robin speak with Dr. David Gerber of UTSW about the changes that have been made to keep clinical trials going and patients safe during the COVID emergency.

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Colorado hosts 25th Annual VHL Family Conference

by JoyceGraff | Oct 22, 2018 | Clinical Trials, Empowering Yourself, Managing Your Health, Teamwork with doctors, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

I was privileged to attend the 25th Annual VHL Family Conference in Colorado this past weekend. It was a wonderful meeting. Kudos to Dr. Nicholas Cost and the University of Colorado for their teamwork in serving people with VHL.

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Developments in Renal Medullary Carcinoma

by JoyceGraff | Jan 20, 2018 | Advocating for Yourself, Africa, Cancer, in general, Clinical Trials, Genetic Testing or DNA Testing, Kidney Cancer, Managing Your Health, Podcast, Promoting Research, Sickle Cell, Teamwork with doctors | 0 |

Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.

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Smart Patients are in touch with SmartPatients

by JoyceGraff | Feb 22, 2016 | Cancer, in general, Caregiving, Clinical Trials, Finding others with the same challenges, Podcast | 0 |

Joyce and Robin talk with Dr. Roni Zeiger, CEO of SmartPatients, about the resources for cancer patients available through SmartPatients.com

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Finding Hope

by JoyceGraff | Dec 25, 2014 | Cancer, in general, Clinical Trials, Empowering Yourself, Podcast | 2 |

Mike and Joyce speak with Dana Dornsife, President and Founder of an organization called Lazarex that helps people identify and participate in clinical trials that may be appropriate for their condition.

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Why Participate in a Clinical Trial?

by JoyceGraff | Mar 6, 2014 | Cancer, in general, Clinical Trials, Podcast | 0 |

Allison Risha, RN, BSN, OCN, a nursing program coordinator from the Levine Cancer Institute in Charlotte, North Carolina, joins Mike and Joyce to talk about the current state of clinical trials for genitourinary cancers.

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Fighting Lymphoma with Chemo and a Sense of Humor

by JoyceGraff | Nov 28, 2013 | Cancer, in general, Clinical Trials, Empowering Yourself, Lymphoma, Podcast, Teamwork with doctors | 0 |

Diagnosed six years ago with a lymphoplasmacytic lymphoma called Waldenstrom’s Macroglobulinemia (WM), Jack Whelan is determined to help in care and cure.

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Mike and Joyce Advocating for You

by JoyceGraff | Jun 20, 2013 | Cancer, in general, Clinical Trials, Genetic Testing or DNA Testing, HLRCC, Kidney Cancer, Podcast, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Mike and Joyce have attended a number of conferences recently, advocating for you, and learning more. They take time to interview each other about their recent activities and share with you what they have been up to.

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Lessons from Mark and Forrest

by Michael Lawing | Apr 21, 2013 | Advocating for Yourself, Blog, Cancer, in general, Clinical Trials, Conditions, Developing Local Medical Resources, Empowering Yourself, End of Life issues, Genetic Testing or DNA Testing, Getting a Diagnosis, Managing Fear, Managing Pain, Managing the System, Managing Your Health, Mesothelioma, Promoting Research, Teamwork with doctors | 0 |

Mike Lawing shares his thoughts about life, risk factors, and our different vulnerabilities to cancers and other diseases such as mesothelioma.

Cancer of the Appendix

by JoyceGraff | Feb 28, 2013 | Appendix cancer, Clinical Trials, Podcast | 0 |

Carolyn Langlie-Lesnik speaks with Mike and Joyce about cancer of the appendix, a rare form of cancer of the gastrointestinal tract. Cancer of the appendix may cause appendicitis or cause the appendix to rupture. Sometimes this is the first symptom of appendix cancer. Many times there are no symptoms of appendix cancer until it has progressed and is advanced. Abdominal discomfort and bloating of the abdomen can be signs of advanced appendiceal cancer

Things As They Are: Billy’s Lesson on Acceptance

by Michael Lawing | Feb 12, 2013 | Advocating for Yourself, Africa, Blog, Brain tumor, Breast Cancer, Cancer, in general, Caregiving, Clinical Trials, Conditions, Depression, Empowering Yourself, Genetic Testing or DNA Testing, Getting a Diagnosis, Healthcare Systems and Insurance, Immune System Issues, Kidney Cancer, Love, Marriage, and Children, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Nutrition, Promoting Research, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

“Remember that you can’t control everything in life. At some point you have to accept things as they are.” Billy Foster to Paul Larson, October, 2011 Dear Fellow Travelers: I’m a fan...

Category: Clinical Trials

International Kidney Cancer Coalition (IKCC)

Clinical Trials in the time of COVID-19

Colorado hosts 25th Annual VHL Family Conference

Developments in Renal Medullary Carcinoma

Smart Patients are in touch with SmartPatients

Finding Hope

Why Participate in a Clinical Trial?

Fighting Lymphoma with Chemo and a Sense of Humor

Mike and Joyce Advocating for You

Lessons from Mark and Forrest

Cancer of the Appendix

Things As They Are: Billy’s Lesson on Acceptance

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