Finding others with the same challenges | Powerful Patient

Finding Fulfillment in Giving Back to Others

by JoyceGraff | Oct 10, 2023 | Blog, Finding others with the same challenges, Managing Stress, Rett Syndrome | 0 |

Safe in AmericaSofiia, Yulia, Ivan and Joyce Click Here Thanking RotariansDiana, Joyce, Yulia, and...

Helping People with Kidney Cancer, Remembering Judy

by JoyceGraff | Aug 1, 2018 | Finding others with the same challenges, Kidney Cancer, Podcast | 0 |

Nick Nicholson shares the story of his late wife Judy who had kidney cancer and the foundation they created to help others.

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Powerful Patients talk Kidney Cancer

by JoyceGraff | May 6, 2018 | Finding others with the same challenges, Kidney Cancer | 0 |

The Annual Convention of the International Kidney Cancer Coalition held in Mexico City, Mexico in April, 2018 had delegates from 25 nations. Join our Powerful Patient Co-Hosts Robin, Joyce, and Mike as they discuss the meeting.

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Quilts and Health

by JoyceGraff | Mar 19, 2018 | Empowering Yourself, Finding others with the same challenges, Managing Stress, Podcast | 0 |

We talk with Clare Luz, author of Quilts and Health, which explores the healing power of quilts and quiltmaking and the deep connections between art and health.

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Updating the Advocacy Activities of Robin and Mike

by Michael Lawing | Jan 19, 2018 | Advocating for Yourself, Cancer, in general, Chronic Fatigue Syndrome (CFS), Empowering Yourself, Finding others with the same challenges, Getting a Diagnosis, Kidney Cancer, Managing the System, Managing Your Health, Managing Your Life, Podcast, Rare Diseases, Teamwork with doctors | 0 |

Robin and Mike have a discussion about their current activities in healthcare advocacy, and how advocacy can be beneficial to persons dealing with personal challenges in medical conditions

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Welcoming Karen Gibson

by JoyceGraff | Feb 2, 2017 | Advocating for Yourself, Cancer, in general, Finding others with the same challenges, Kidney Cancer, Podcast, Promoting Research | 0 |

Joyce and Robin speak with Karen G. of Florida. Karen shares her story of living with kidney cancer and working with others in her community to inspire them with hope.

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ALDconnect – you are not alone

by JoyceGraff | Mar 1, 2016 | Adrenal Leukodystrophy (ALD), Finding others with the same challenges, Podcast | 0 |

Following her son’s diagnosis with X-linked adrenoleukodystrophy (ALD) Kathleen O’Sullivan-Fortin took an active role as patient advocate for her son.

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Smart Patients are in touch with SmartPatients

by JoyceGraff | Feb 22, 2016 | Cancer, in general, Caregiving, Clinical Trials, Finding others with the same challenges, Podcast | 0 |

Joyce and Robin talk with Dr. Roni Zeiger, CEO of SmartPatients, about the resources for cancer patients available through SmartPatients.com

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Should I go to a Patient Support Conference?

by JoyceGraff | Dec 17, 2015 | Empowering Yourself, Finding others with the same challenges, Metabolic disorders, Podcast | 0 |

What happens at a patient support conference? Is it worthwhile to go, or will it be stressful? Carla talks about her recent experience.

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The Impact of Social Media on Healthcare

by JoyceGraff | Oct 27, 2015 | Empowering Yourself, Finding others with the same challenges, Podcast, Spine and 22q11 deletion | 0 |

Dr. Paula Goldenberg talks with Robin and Joyce about her social media “clinic” on Facebook.

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Welcome Robin Martinez

by JoyceGraff | Aug 6, 2015 | Empowering Yourself, Finding others with the same challenges, Kidney Cancer, Podcast, Teamwork with doctors, Wellness and Living with a Difficult or Rare Condition | 0 |

Mike Lawing has retired from Powerful Patient. We wish him well in his new endeavors. Mike and Joyce welcome Robin Martinez as the new co-host of Powerful Patient. Robin and Joyce talk about some of their new ideas and directions for the show and the advocacy efforts of Powerful Patient Inc.

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Differences, Bullying, and Sturge-Weber Syndrome

by JoyceGraff | Feb 5, 2015 | Bullying, Domestic Abuse, Finding others with the same challenges, Podcast, Sturge-Weber Syndrome (SWS) | 0 |

Karen Ball, CEO of the Sturge-Weber Foundation, speaks with Joyce about Sturge-Weber syndrome (SWS) and the challenges faced by people with this condition.

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Category: Finding others with the same challenges

Finding Fulfillment in Giving Back to Others

Helping People with Kidney Cancer, Remembering Judy

Powerful Patients talk Kidney Cancer

Quilts and Health

Updating the Advocacy Activities of Robin and Mike

Welcoming Karen Gibson

ALDconnect – you are not alone

Smart Patients are in touch with SmartPatients

Should I go to a Patient Support Conference?

The Impact of Social Media on Healthcare

Welcome Robin Martinez

Differences, Bullying, and Sturge-Weber Syndrome

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