Podcast: Play in new window | Download (Duration: 31:22 — 28.7MB)

Subscribe: RSS

Medical conditions that affect organ systems in more than one medical specialty area are particularly hard to deal with.  Diagnosis, management, all are difficult because no single doctor understands the interworkings of the problems.  This leaves much to the patient to coordinate the information from more than one specialist.

Julie Gortze of Mito New England is working with Dr. Amel Karaa and Dr. Mark Korson and Massachusetts General Hospital to assemble a team to help people with mitochondrial disease.  Joyce and Robin talk with Julie about this effort and about their forthcoming meeting, April 30, 2016, in South Attleboro, Massachusetts.

http://www.nergg.org/wp-content/uploads/2016/03/MNE-April-2016.pdf

Update 2018: Julie’s organization has a new name, http://www.mitoaction.org

For names of physicians recommended by Mito Action as particularly helpful with mitochondrial disease, please see http://www.mitoaction.org/doctors