Podcast Episodes | Powerful Patient

Virtual Summit focuses on Better Education for Children with Disabilities – Oct 25

by JoyceGraff | Oct 13, 2024 | Access to education, ADHD, Autism, Brain Injury | 0 |

The Rotary Club of World Disability Advocacy proudly sponsors a virtual, free, all-day Inclusive...

Finding Fulfillment in Giving Back to Others

by JoyceGraff | Oct 10, 2023 | Blog, Finding others with the same challenges, Managing Stress, Rett Syndrome | 0 |

Safe in AmericaSofiia, Yulia, Ivan and Joyce Click Here Thanking RotariansDiana, Joyce, Yulia, and...

Embracing Diversity in drug development

by JoyceGraff | Mar 13, 2023 | Empowering Yourself | 0 |

While this program is designed for members of the PSC community, it is a topic that is important to all rare diseases. PSC Partners is hosting a webinar on “Embracing Diversity in PSC: FDA Insights on the Role of Health...

Breathing Problems? Consider SubGlottic Stenosis (SGS)

by JoyceGraff | Dec 5, 2022 | Conditions, Getting a Diagnosis, Managing Your Health, Podcast, SubGlottic Stenosis (SGS) | 0 |

Catherine Anderson has prepared a Rough Guide for patients to help with SubGlottic Stenosis (SGS), or scar tissue in the trachea constraining breathing.

Listen

Understanding and Managing Post Polio Syndrome

by JoyceGraff | Dec 4, 2022 | Podcast, Polio, Understanding your Risks | 0 |

Ina Pinkney, the Breakfast Queen of Chicago, joins Joyce Graff to speak about Post Polio Syndrome, which can impact someone who survived polio.

Listen

Talking with Joyce Graff

by JoyceGraff | May 10, 2022 | Managing Your Health, Podcast | 0 |

Host Harvey Bravman focuses on her work with Powerful Patient, empowering people to partner with their health care providers and manage their own health.

Listen

Fighting for his Life

by JoyceGraff | Sep 29, 2021 | Blog | 0 |

A rare brain tumor is threatening his life. Can we find help in time? Can you help?

Listen

Then and Now – VHL Alliance in 1994 and 2021

by JoyceGraff | Sep 22, 2021 | Advocating for Yourself, Managing the System, VHL von Hippel-Lindau | 0 |

Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement.

Listen

Bruising? Bleeding? Lightheaded standing up? Heart Racing? Consider POTS

by JoyceGraff | Aug 11, 2021 | Conditions, Coronavirus, COVID-19, Immune System Issues, POTS | 0 |

Positional Orthostatic Tachycardia Syndrome (POTS) is a multi-system conditions that are very tricky to diagnose. It may be an auto-immune disorder.

Listen

International Kidney Cancer Coalition (IKCC)

by JoyceGraff | May 10, 2021 | Caregiving, Clinical Trials, Kidney Cancer | 0 |

Meet Marta Szulc (say “Shultz”) Marta Szulc First Ever Executive Director IKCC...

Help for Teens with Migraines

by JoyceGraff | Apr 22, 2021 | Headaches, Migraines, Podcast | 0 |

https://powerfulpatient.org/wp-content/uploads/2021/04/mcvige-140.png

Dr. Jennifer McBige helps us understand what makes migraines different, and new non-drug treatment options including one approved for teens.

Listen

Why We Do the Things We Do

by JoyceGraff | Apr 19, 2021 | Immunization and public health, Podcast, Vaccines, Weight Control | 0 |

Bob Raleigh talks about his research into why we do the things we do. He describes how doctors and counselors can shape their messages in order to be heard.

Listen

Virtual Summit focuses on Better Education for Children with Disabilities – Oct 25

Finding Fulfillment in Giving Back to Others

Embracing Diversity in drug development

Breathing Problems? Consider SubGlottic Stenosis (SGS)

Understanding and Managing Post Polio Syndrome

Talking with Joyce Graff

Fighting for his Life

Then and Now – VHL Alliance in 1994 and 2021

Bruising? Bleeding? Lightheaded standing up? Heart Racing? Consider POTS

International Kidney Cancer Coalition (IKCC)

Help for Teens with Migraines

Why We Do the Things We Do

Subscribe to Podcast

Categories available

Recent posts