JoyceGraff | Powerful Patient

India 2018

Posted by JoyceGraff | Jul 3, 2009 | Empowering Yourself |

2018 IndiaItinerary New Delhi Varanasi Agra Ranthambore Jaipur Delhi Kathmandu Delhi – Dubai – Boston Kochi Mumbai Aurangabad Mumbai – Dubai – Boston Jews arrived here with King Solomon’s merchant fleet a holy...

It Runs in the Family: Birt-Hogg-Dubé

Posted by JoyceGraff | Apr 3, 2009 | Birt-Hogg-Dubé (BHD), Dermatology, Kidney Cancer, Lung conditions, Podcast |

Cathy Sherman, Founder of the Birt-Hogg-Dubé Syndrome (BHD) Family Alliance, spoke with Joyce in 2009 about how her family learned why so many members were getting kidney cancer, and how they formed a group to support one another and find answers. Cathy passed away in 2012, but her work continues in the BHD Foundation.

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The Perfect Gift: Kidney Transplant

Posted by JoyceGraff | Oct 28, 2007 | Blindness, Managing Stress, Podcast, Transplantation, VHL von Hippel-Lindau |

In October 2007, Edbassmaster, one of the comedy personalities of Youtube, donated a kidney to his sister, Maureen. Many of his fans sent messages of support for him and his sister. On this program we meet with Ed and Maureen to talk about their experience.

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Altheada’s Story – a Patient’s Perspective

Posted by JoyceGraff | Apr 25, 2007 | Blog, Empowering Yourself, Genetic Testing or DNA Testing, Getting a Diagnosis, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition |

Getting a diagnosis of a rare disease is not easy. When the diagnosis finally comes there is both relief and terror — what is ahead, for myself and my family?