Birt-Hogg-Dubé (BHD) | Powerful Patient

Radiation protection in medicine – world view

by JoyceGraff | Nov 1, 2018 | Birt-Hogg-Dubé (BHD), Cancer, in general, HLRCC, Kidney Cancer, Medical Imaging, Podcast, VHL von Hippel-Lindau | 2 |

Joyce speaks about radiation in medical imaging with Dr. Madan Rehani, Director of Radiation Protection at the International Atomic Energy Agency in Vienna, Austria.

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Report from Joyce’s Travels

by JoyceGraff | Oct 31, 2013 | Advocating for Yourself, Birt-Hogg-Dubé (BHD), Developing Local Medical Resources, Empowering Yourself, HLRCC, Podcast, Promoting Research, Routine maintenance, Teamwork with doctors, VHL von Hippel-Lindau | 0 |

Joyce Graff toured ten cities in September and October, speaking with audiences affected by VHL, BHD, and HLRCC. Mike Lawing interviews her about what she saw, what she did, and what she learned.

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Redefining Cancer

by JoyceGraff | Sep 26, 2013 | Birt-Hogg-Dubé (BHD), Breast Cancer, Cancer, in general, Empowering Yourself, HLRCC, Kidney Cancer, Lung Cancer, Podcast, Prostate Cancer, VHL von Hippel-Lindau | 0 |

Cheryl Gradziel, an analyst with Global Data, talks about the NCI recommendation to change the language of cancer to reduce overtreatment of early-stage tumors.

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Kidney Cancer in Brazil

by JoyceGraff | Jul 18, 2013 | Birt-Hogg-Dubé (BHD), Cancer, in general, Healthcare Systems and Insurance, HLRCC, Podcast, VHL von Hippel-Lindau | 0 |

Luciana Holz talks about the work of her institute on all forms of cancer in Brazil. Their work focuses primarily on helping patients navigate the medical world and the healthcare system, both public and private, in Brazil and improve their quality of life.

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What is KIDNEY-ONC?

by JoyceGraff | Apr 18, 2013 | Birt-Hogg-Dubé (BHD), Cancer, in general, Empowering Yourself, HLRCC, Kidney Cancer, Podcast, VHL von Hippel-Lindau | 0 |

Robin Martinez is an administrator for three important email discussion lists for kidney cancer. Patients, survivors, caregivers, and professionals discuss current treatments and how to choose among them, side effects, clinical trials, and much more.

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Living with BHD – Birt-Hogg-Dubé syndrome

by JoyceGraff | Jan 10, 2013 | Birt-Hogg-Dubé (BHD), Cancer, in general, Conditions, Getting a Diagnosis, Kidney Cancer, Podcast | 0 |

Jean S. from Oregon joins Mike and Joyce for a conversation about Birt-Hogg-Dubé syndrome, one of several recently identified genetic causes of kidney cancer. Jean shares her story of diagnosis — how she found out the name of the condition that was plaguing her — and how she has learned to manage her health.

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Archive

by | Jan 1, 2011 | Advocating for Yourself, Africa, Alzheimer's, Birt-Hogg-Dubé (BHD), Blindness, Brain tumor, Breast Cancer, Cancer, in general, Caregiving, Clinical Trials, Conditions, Dementia, Depression, Emergency Preparedness, Empowering Yourself, Fibromyalgia, Genetic Testing or DNA Testing, Getting a Diagnosis, Healthcare Systems and Insurance, HLRCC, Immune System Issues, Infertility, Irritable Bowel Syndrome, Kidney Cancer, Love, Marriage, and Children, Lung Cancer, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Nutrition, Podcast, Promoting Research, Prostate Cancer, Protecting Your Job, Psychosis, PTSD Post Traumatic Stress Disorder, Quitting smoking, Transplantation, Travel, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Shows from 2011 Support for Children whose siblings have special needs, 10-27-2011 Elizabeth Batson’s new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose...

It Runs in the Family: Birt-Hogg-Dubé

by JoyceGraff | Apr 3, 2009 | Birt-Hogg-Dubé (BHD), Dermatology, Kidney Cancer, Lung conditions, Podcast | 0 |

Cathy Sherman, Founder of the Birt-Hogg-Dubé Syndrome (BHD) Family Alliance, spoke with Joyce in 2009 about how her family learned why so many members were getting kidney cancer, and how they formed a group to support one another and find answers. Cathy passed away in 2012, but her work continues in the BHD Foundation.

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Category: Birt-Hogg-Dubé (BHD)

Radiation protection in medicine – world view

Report from Joyce’s Travels

Redefining Cancer

Kidney Cancer in Brazil

What is KIDNEY-ONC?

Living with BHD – Birt-Hogg-Dubé syndrome

Archive

It Runs in the Family: Birt-Hogg-Dubé

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