Brain tumor | Powerful Patient

Support for Brain Disorders

by JoyceGraff | Apr 4, 2018 | Brain tumor, Parkinson's and Parkinsonian syndromes, Podcast | 0 |

Robin Riddle of the Brain Support Network shares how the group assists people with neurological conditions and dementia and their caregivers.

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Diagnosing a Rare Disease – a Case from Ireland

by JoyceGraff | Apr 24, 2014 | Brain tumor, Empowering Yourself, Kidney Cancer, Podcast, Rare Diseases, VHL von Hippel-Lindau | 0 |

Mike and Joyce talk with Gloria about her family’s adventure getting to a diagnosis of a brain tumor and a rare disease.

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Passing it Forward – DIPG

by JoyceGraff | Feb 6, 2014 | Brain tumor, Cancer, in general, End of Life issues, Podcast | 0 |

Mike and Joyce speak with Louise Bunting about her experience, about DIPG, and about turning her grief and that of her family and friends into positive action, passing forward the kindness that was shown to them.

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Computers, Robots, and Games to promote healing

by JoyceGraff | Dec 27, 2013 | Brain Injury, Brain tumor, Podcast, Rehabilitation, Stroke | 0 |

Dr. Hermano Igo Krebs of MIT is inventing machines to assist patients with rehabilitation from brain injury – from stroke to cerebral palsy to accidents and surgery.

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Things As They Are: Billy’s Lesson on Acceptance

by Michael Lawing | Feb 12, 2013 | Advocating for Yourself, Africa, Blog, Brain tumor, Breast Cancer, Cancer, in general, Caregiving, Clinical Trials, Conditions, Depression, Empowering Yourself, Genetic Testing or DNA Testing, Getting a Diagnosis, Healthcare Systems and Insurance, Immune System Issues, Kidney Cancer, Love, Marriage, and Children, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Nutrition, Promoting Research, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

“Remember that you can’t control everything in life. At some point you have to accept things as they are.” Billy Foster to Paul Larson, October, 2011 Dear Fellow Travelers: I’m a fan...

Under The Radar: Distress Screening

by Michael Lawing | Jan 4, 2013 | Advocating for Yourself, Blog, Brain tumor, Breast Cancer, Cancer, in general, Caregiving, Conditions, Depression, Empowering Yourself, Getting a Diagnosis, Healthcare Systems and Insurance, Immune System Issues, Kidney Cancer, Love, Marriage, and Children, Lung Cancer, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Promoting Research, Prostate Cancer, Protecting Your Job, Psychosis, Travel, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Prologue: I seldom dwell on the fact that I am a cancer survivor. Now in my 16th year of survivorship I feel that I have grown comfortable with the fact that this type of cancer is essentially incurable, that it still has the...

Breaking the Habit

by Michael Lawing | Dec 14, 2012 | Blog, Brain tumor, Breast Cancer, Cancer, in general, Conditions, Dementia, Depression, Empowering Yourself, Fibromyalgia, HLRCC, Immune System Issues, Irritable Bowel Syndrome, Kidney Cancer, Lung Cancer, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Promoting Research, Prostate Cancer, Quitting smoking, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Mike talks about his own experience quitting smoking, and encourages you to do the same. At the very least, get the smoke out of your life even if you can’t kick the nicotine. Getting rid of nicotine and tar significantly lowers your health risks.

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Filmmaker talks about life with a rare disease

by JoyceGraff | Jan 12, 2012 | Brain tumor, Conditions, Empowering Yourself, Managing Your Health, Managing Your Life, Nutrition, Podcast, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Tarek McCarthy, actor, model, director and producer, talks with Joyce about his experiences living with a rare disease, and how it has shaped his character.

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Archive

by | Jan 1, 2011 | Advocating for Yourself, Africa, Alzheimer's, Birt-Hogg-Dubé (BHD), Blindness, Brain tumor, Breast Cancer, Cancer, in general, Caregiving, Clinical Trials, Conditions, Dementia, Depression, Emergency Preparedness, Empowering Yourself, Fibromyalgia, Genetic Testing or DNA Testing, Getting a Diagnosis, Healthcare Systems and Insurance, HLRCC, Immune System Issues, Infertility, Irritable Bowel Syndrome, Kidney Cancer, Love, Marriage, and Children, Lung Cancer, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Nutrition, Podcast, Promoting Research, Prostate Cancer, Protecting Your Job, Psychosis, PTSD Post Traumatic Stress Disorder, Quitting smoking, Transplantation, Travel, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Shows from 2011 Support for Children whose siblings have special needs, 10-27-2011 Elizabeth Batson’s new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose...

Category: Brain tumor

Support for Brain Disorders

Diagnosing a Rare Disease – a Case from Ireland

Passing it Forward – DIPG

Computers, Robots, and Games to promote healing

Things As They Are: Billy’s Lesson on Acceptance

Under The Radar: Distress Screening

Breaking the Habit

Filmmaker talks about life with a rare disease

Archive

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