Category: HLRCC
Learning more about HLRCC
by JoyceGraff | Aug 16, 2014 | Fibroids, HLRCC, Kidney Cancer, Podcast | 0 |
Redefining Cancer
by JoyceGraff | Sep 26, 2013 | Birt-Hogg-Dubé (BHD), Breast Cancer, Cancer, in general, Empowering Yourself, HLRCC, Kidney Cancer, Lung Cancer, Podcast, Prostate Cancer, VHL von Hippel-Lindau | 0 |
Kidney Cancer in Brazil
by JoyceGraff | Jul 18, 2013 | Birt-Hogg-Dubé (BHD), Cancer, in general, Healthcare Systems and Insurance, HLRCC, Podcast, VHL von Hippel-Lindau | 0 |
H.B. 609 – The Cancer Treatment Fairness Act of NC
by Michael Lawing | Apr 27, 2013 | Appendix cancer, Blog, Breast Cancer, Cancer, in general, Healthcare Systems and Insurance, HLRCC, Kidney Cancer, Lung Cancer, Mesothelioma, Prostate Cancer, Sarcoma, VHL von Hippel-Lindau | 0 |
From Mike Lawing: Dear Fellow Travelers: I’m attaching some information about a bill that is working its way through the North Carolina state legislature. This bill entitled “H.B. 609 – The Cancer Treatment Fairness...
Read MoreWhat is KIDNEY-ONC?
by JoyceGraff | Apr 18, 2013 | Birt-Hogg-Dubé (BHD), Cancer, in general, Empowering Yourself, HLRCC, Kidney Cancer, Podcast, VHL von Hippel-Lindau | 0 |
Clinical Trials for All
by JoyceGraff | Feb 7, 2013 | Cancer, in general, HLRCC, Kidney Cancer, Podcast, VHL von Hippel-Lindau | 0 |
Billy Foster is in a clinical trial and has had a good response to the drug he is taking. It is not easy to design a trial. We want to learn all the information on safety and effectiveness that we will want to know once it goes on the market. At the same time we don’t want to over-complicate the clinical trial process and take too long to approve drugs that are doing well. Billy talks with Mike and Joyce about advocating for clinical trials that work for the participants, the physicians, the pharmaceuticals, and most of all for the people who will use these drugs once they are approved.
Breaking the Habit
by Michael Lawing | Dec 14, 2012 | Blog, Brain tumor, Breast Cancer, Cancer, in general, Conditions, Dementia, Depression, Empowering Yourself, Fibromyalgia, HLRCC, Immune System Issues, Irritable Bowel Syndrome, Kidney Cancer, Lung Cancer, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Promoting Research, Prostate Cancer, Quitting smoking, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |
Food for Thought: The Work of Community Servings
by Michael Lawing | Dec 7, 2012 | Advocating for Yourself, Alzheimer's, Blog, Breast Cancer, Cancer, in general, Caregiving, Conditions, Empowering Yourself, Healthcare Systems and Insurance, HLRCC, Immune System Issues, Irritable Bowel Syndrome, Kidney Cancer, Lung Cancer, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Nutrition, Promoting Research, Prostate Cancer, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |
Meet Mike Lawing, Cancer Navigator, Health Advocate
by JoyceGraff | Aug 16, 2012 | Breast Cancer, Conditions, HLRCC, Kidney Cancer, Lung Cancer, Managing Your Health, Podcast, Prostate Cancer, Wellness and Living with a Difficult or Rare Condition | 0 |
Joyce talks with Mike Lawing, a colleague and friend through patient advocacy work. Mike is a delightful guy with a rich Southern drawl. Mike Lawing was diagnosed with kidney cancer 15 years ago. He has spent those years taking good care of his own health, and has also become very involved with cancer survivorship and advocacy for patients and their caregivers in a number of ways.
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