Managing the System | Powerful Patient

Virtual Summit focuses on Better Education for Children with Disabilities – Oct 25

by JoyceGraff | Oct 13, 2024 | Access to education, ADHD, Autism, Brain Injury | 0 |

The Rotary Club of World Disability Advocacy proudly sponsors a virtual, free, all-day Inclusive...

Then and Now – VHL Alliance in 1994 and 2021

by JoyceGraff | Sep 22, 2021 | Advocating for Yourself, Managing the System, VHL von Hippel-Lindau | 0 |

Members of the 1994 Board of Directors of the VHL Alliance meet with Chandra Clark, current Executive Director, and Heidi Leone, Director of Advancement.

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Teaching Visually Impaired Students in Public Schools

by JoyceGraff | Sep 17, 2020 | Access to education, Blindness, Managing the System, Podcast | 0 |

Arlene Hernandez, a retired TVI, talks with Joyce about the joys and challenges of teaching visually handicapped students in the public schools.

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Kaelin wins a Nobel Prize!

by JoyceGraff | Oct 16, 2019 | Blog, Promoting Research | 0 |

Harvard doctor among trio of scientists jointly awarded Nobel Prize in medicine for their work identifying how cells adapt to changes in oxygen levels.

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Cancer Biology and Dr. Copland’s Lab

by JoyceGraff | Apr 11, 2019 | Breast Cancer, Cancer, in general, Conditions, Kidney Cancer, Podcast, Promoting Research, Teamwork with doctors, Thyroid Cancer | 0 |

Cancer is a complex disease, and no one knows this better than Dr. John “Al” Copland, who has made cancer research his life’s work.

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Access and Care for People with Disabilities

by JoyceGraff | Apr 1, 2019 | Healthcare Systems and Insurance, Legal rights, Paraplegia, Podcast, Protecting Your Job, Spinal Muscular Atrophy (SMA) | 0 |

The US’s disability social safety net is profoundly broken, says Anna Landry, a handicapped student at Georgetown University.

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Kidney Cancer patient experience in North Carolina

by JoyceGraff | Mar 22, 2019 | Cancer, in general, Kidney Cancer, Podcast, Promoting Research | 0 |

Conversation with Ann and Chris about their experiences

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Myeloma Patient Rockstar: Cindy Chmielewski

by JoyceGraff | Mar 20, 2019 | Multiple Myeloma, Podcast, Promoting Research | 0 |

We learn some interesting things about multiple myeloma.

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Rebecca Esparza campaigns for Ovarian Cancer

by JoyceGraff | Mar 6, 2019 | Cancer, in general, Ovarian Cancer, Podcast, Promoting Research, Teamwork with doctors | 0 |

Rebecca speaks for all women with ovarian cancer, including those taken from us too soon.

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Fighting Colorectal Cancer by understanding your risk factors

by JoyceGraff | Feb 24, 2019 | Cancer, in general, Colon cancer, Colorectal cancer, Endometrial cancer, Lynch syndrome, Podcast, Promoting Research, Rectal cancer, Understanding your Risks | 0 |

Wenora Johnson shares her story — surviving cancer 3 times, she is passionate about understanding your biomarkers.

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Susie Brain, a survivor of breast cancer, works with researchers to find a cure

by JoyceGraff | Feb 6, 2019 | Advocating for Yourself, Breast Cancer, Empowering Yourself, Podcast, Promoting Research, Teamwork with doctors | 0 |

Susie Brain speaks with Mike, Robin and Joyce about her work as a survivor and advocate with breast cancer.

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Colorado hosts 25th Annual VHL Family Conference

by JoyceGraff | Oct 22, 2018 | Clinical Trials, Empowering Yourself, Managing Your Health, Teamwork with doctors, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

I was privileged to attend the 25th Annual VHL Family Conference in Colorado this past weekend. It was a wonderful meeting. Kudos to Dr. Nicholas Cost and the University of Colorado for their teamwork in serving people with VHL.

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Category: Managing the System

Virtual Summit focuses on Better Education for Children with Disabilities – Oct 25

Then and Now – VHL Alliance in 1994 and 2021

Teaching Visually Impaired Students in Public Schools

Kaelin wins a Nobel Prize!

Cancer Biology and Dr. Copland’s Lab

Access and Care for People with Disabilities

Kidney Cancer patient experience in North Carolina

Rebecca Esparza campaigns for Ovarian Cancer

Fighting Colorectal Cancer by understanding your risk factors

Susie Brain, a survivor of breast cancer, works with researchers to find a cure

Colorado hosts 25th Annual VHL Family Conference

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