Genetic Testing or DNA Testing | Powerful Patient

Exploring Your Genome

by JoyceGraff | Oct 7, 2018 | Advocating for Yourself, Empowering Yourself, Genetic Testing or DNA Testing, Getting a Diagnosis, Podcast | 0 |

Max McCoy speaks with Joyce about his recent personal adventure, exploring the depths of his own genome — an ongoing adventure worthy of some of his fictional heroes, with unexpected twists and turns, sometimes more information than you know what to do with.

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Developments in Renal Medullary Carcinoma

by JoyceGraff | Jan 20, 2018 | Advocating for Yourself, Africa, Cancer, in general, Clinical Trials, Genetic Testing or DNA Testing, Kidney Cancer, Managing Your Health, Podcast, Promoting Research, Sickle Cell, Teamwork with doctors | 0 |

Cora Connor shares her brother’s story of renal medullary carcinoma and its association with Sickle Cell trait. It is not necessary to have Sickle Cell disease to have RMC.

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Knowing Your Family Medical History

by JoyceGraff | Apr 5, 2016 | Blog, Empowering Yourself, Genetic Testing or DNA Testing | 0 |

See My Family Health Portrait to enter your family medical history and know what medical risks you will need to manage.

Ellen Matloff and MyGeneCounsel

by JoyceGraff | Apr 9, 2015 | Breast Cancer, Empowering Yourself, Genetic Testing or DNA Testing, Podcast | 0 |

Joyce speaks with genetic counselor Ellen Matloff about her newest venture, MyGeneCounsel.

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Listening, Reflecting, Healing

by JoyceGraff | Mar 11, 2015 | Birth defects, Genetic Testing or DNA Testing, Podcast | 0 |

Mike and Joyce speak with Mary-Frances Garber, a genetic counselor who provides Supportive Genetic Counseling, complementing what is traditionally offered in medical centers.

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Living with Barth Syndrome

by JoyceGraff | Jan 22, 2015 | Barth Syndrome, End of Life issues, Genetic Testing or DNA Testing, Podcast, Wellness and Living with a Difficult or Rare Condition | 0 |

Shelley speaks with Mike and Joyce about life with Barth Syndrome, and how families cope when life ends.

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Tests Your Doctor Should Run

by JoyceGraff | Aug 22, 2013 | Genetic Testing or DNA Testing, Nutrition, Podcast, Prevention | 0 |

Dr. Wald suggests six blood tests that you should ask your doctor to run. These are tests that hold critical clues to your well-being, mood and disease potential. “These tests should be a part of your overall care,” according to Dr. Michael Wald, known as “The Blood Detective.” They are standard tests that can be ordered by any physician.

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Genetic Risk – Empower yourself by understanding your risks

by JoyceGraff | Jun 27, 2013 | Cancer, in general, Empowering Yourself, Genetic Testing or DNA Testing, Getting a Diagnosis, Kidney Cancer, Managing Stress, Podcast, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Keith Julian Richards (aka Just Sayin’), a poet and Hip Hop artist from New York, shares his journey with a rare disease known as VHL, learning to manage risk.

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Mike and Joyce Advocating for You

by JoyceGraff | Jun 20, 2013 | Cancer, in general, Clinical Trials, Genetic Testing or DNA Testing, HLRCC, Kidney Cancer, Podcast, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Mike and Joyce have attended a number of conferences recently, advocating for you, and learning more. They take time to interview each other about their recent activities and share with you what they have been up to.

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Lessons from Mark and Forrest

by Michael Lawing | Apr 21, 2013 | Advocating for Yourself, Blog, Cancer, in general, Clinical Trials, Conditions, Developing Local Medical Resources, Empowering Yourself, End of Life issues, Genetic Testing or DNA Testing, Getting a Diagnosis, Managing Fear, Managing Pain, Managing the System, Managing Your Health, Mesothelioma, Promoting Research, Teamwork with doctors | 0 |

Mike Lawing shares his thoughts about life, risk factors, and our different vulnerabilities to cancers and other diseases such as mesothelioma.

Things As They Are: Billy’s Lesson on Acceptance

by Michael Lawing | Feb 12, 2013 | Advocating for Yourself, Africa, Blog, Brain tumor, Breast Cancer, Cancer, in general, Caregiving, Clinical Trials, Conditions, Depression, Empowering Yourself, Genetic Testing or DNA Testing, Getting a Diagnosis, Healthcare Systems and Insurance, Immune System Issues, Kidney Cancer, Love, Marriage, and Children, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Nutrition, Promoting Research, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

“Remember that you can’t control everything in life. At some point you have to accept things as they are.” Billy Foster to Paul Larson, October, 2011 Dear Fellow Travelers: I’m a fan...

Category: Genetic Testing or DNA Testing

Exploring Your Genome

Developments in Renal Medullary Carcinoma

Knowing Your Family Medical History

Ellen Matloff and MyGeneCounsel

Listening, Reflecting, Healing

Living with Barth Syndrome

Tests Your Doctor Should Run

Genetic Risk – Empower yourself by understanding your risks

Mike and Joyce Advocating for You

Lessons from Mark and Forrest

Things As They Are: Billy’s Lesson on Acceptance

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