Transplantation | Powerful Patient

Getting to the Bottom of Gastrointestinal Complaints

by JoyceGraff | Mar 7, 2013 | Inflammatory Bowel disease, Podcast, Primary Sclerosing Cholangitis (PSC), Transplantation, Ulcerative Colitis | 0 |

On this week’s show Joyce and Mike welcome Ricky Safer (CEO) and Joanne Grieme (Board Chair) from PSC Partners Seeking a Cure, a non-profit dedicated to finding a cure for Primary Sclerosing Cholangitis. PSC is a chronic liver disease where the bile ducts become impaired, eventually leading to deterioration of the liver. It is commonly associated with inflammatory bowel disease and ulcerative colitis.

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The Making of “I Once Was Blind”

by JoyceGraff | Nov 22, 2012 | Blindness, Empowering Yourself, Kidney Cancer, Love, Marriage, and Children, Podcast, Transplantation, VHL von Hippel-Lindau | 0 |

Charlene and Jeffrey Chapman walk with Joyce about their experience creating the film “I Once Was Blind,” a new independent film documenting the life of a young woman living with VHL.

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Archive

by | Jan 1, 2011 | Advocating for Yourself, Africa, Alzheimer's, Birt-Hogg-Dubé (BHD), Blindness, Brain tumor, Breast Cancer, Cancer, in general, Caregiving, Clinical Trials, Conditions, Dementia, Depression, Emergency Preparedness, Empowering Yourself, Fibromyalgia, Genetic Testing or DNA Testing, Getting a Diagnosis, Healthcare Systems and Insurance, HLRCC, Immune System Issues, Infertility, Irritable Bowel Syndrome, Kidney Cancer, Love, Marriage, and Children, Lung Cancer, Managing Stress, Managing the System, Managing Your Health, Managing Your Life, Mental crisis, Nutrition, Podcast, Promoting Research, Prostate Cancer, Protecting Your Job, Psychosis, PTSD Post Traumatic Stress Disorder, Quitting smoking, Transplantation, Travel, VHL von Hippel-Lindau, Wellness and Living with a Difficult or Rare Condition | 0 |

Shows from 2011 Support for Children whose siblings have special needs, 10-27-2011 Elizabeth Batson’s new book *I Have Needs Too! Supporting the Child Whose Sibling Has Special Needs* combines quotes and drawings from kids whose...

The Perfect Gift: Kidney Transplant

by JoyceGraff | Oct 28, 2007 | Blindness, Managing Stress, Podcast, Transplantation, VHL von Hippel-Lindau | 0 |

In October 2007, Edbassmaster, one of the comedy personalities of Youtube, donated a kidney to his sister, Maureen. Many of his fans sent messages of support for him and his sister. On this program we meet with Ed and Maureen to talk about their experience.