Category: Managing Your Life

Finding Fulfillment in Giving Back to Others

by JoyceGraff | Oct 10, 2023 | Blog, Finding others with the same challenges, Managing Stress, Rett Syndrome | 0 |

Safe in AmericaSofiia, Yulia, Ivan and Joyce Click Here Thanking RotariansDiana, Joyce, Yulia, and...

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Embracing Diversity in drug development

by JoyceGraff | Mar 13, 2023 | Empowering Yourself | 0 |

While this program is designed for members of the PSC community, it is a topic that is important to all rare diseases. PSC Partners is hosting a webinar on “Embracing Diversity in PSC: FDA Insights on the Role of Health...

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COVID-19 and Participatory Medicine

by JoyceGraff | Mar 31, 2021 | Coronavirus, COVID-19, Pandemic, Podcast, Wellness and Living with a Difficult or Rare Condition | 0 |

Author Michael Millenson speaks with us about how people with complex medical conditions need to work with their doctors to manage the risks of COVID-19.

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Rare Disease Day Events

by JoyceGraff | Feb 24, 2021 | Blog, Empowering Yourself, Rare Diseases | 0 |

While horses are more common, zebra do exist. People with rare diseases deserve a diagnosis and fair access to care. Come and learn.

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Wellness and Resilience through Integrated Health

by JoyceGraff | Oct 11, 2020 | Getting enough sleep, Infertility, Managing Fear, Managing Stress, Medical Imaging, Mind-Body connection, Pandemic, Podcast, Wellness and Living with a Difficult or Rare Condition | 0 |

Dr. Daniel Monti speaks with Joyce Graff and Megan Conley about his new book, Tapestry of Health, providing guidance on supporting your own wellness and resilience.

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COVID: The Real Science

by JoyceGraff | Sep 24, 2020 | Blog, Coronavirus, COVID-19, Managing Fear, Managing Stress, Pandemic, Podcast | 0 |

Five experts meet to discuss COVID-19, how to end a pandemic, and how to protect ourselves while it is with us: Masks, Testing, Vaccines, and keeping safe.

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COVID Online Schooling for the Visually Impaired

by JoyceGraff | Jul 22, 2020 | Blindness, Coronavirus, COVID-19, Pandemic, Podcast | 0 |

Sue Buckley of Knoxville has been helping blind young people to gain the skills needed to succeed at online learning. Hints for parents and teachers.

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Staying Sane in Quarantine

by JoyceGraff | May 18, 2020 | Managing Fear, Managing Stress, Managing Your Life, Pandemic, Podcast | 0 |

How to manage your stress in quarantine with the underlying conditions that were already there?

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Coronavirus – the New Normal

by JoyceGraff | Mar 28, 2020 | Coronavirus, COVID-19, Empowering Yourself, Immunization and public health, Podcast | 0 |

Robin Martinez and Joyce Graff talk about the coronavirus and how to protect yourself in these exceptional times.

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Mental Health and Destructive Behavior

by JoyceGraff | Oct 15, 2019 | Blog, Empowering Yourself, Managing Stress, Mental crisis | 0 |

Depression can lead to many dangers, including addiction, suicide, and various forms of self-harm.

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Access and Care for People with Disabilities

by JoyceGraff | Apr 1, 2019 | Healthcare Systems and Insurance, Legal rights, Paraplegia, Podcast, Protecting Your Job, Spinal Muscular Atrophy (SMA) | 0 |

The US’s disability social safety net is profoundly broken, says Anna Landry, a handicapped student at Georgetown University.

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Susie Brain, a survivor of breast cancer, works with researchers to find a cure

by JoyceGraff | Feb 6, 2019 | Advocating for Yourself, Breast Cancer, Empowering Yourself, Podcast, Promoting Research, Teamwork with doctors | 0 |

Susie Brain speaks with Mike, Robin and Joyce about her work as a survivor and advocate with breast cancer.

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Recent posts

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