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Jean S. from Oregon joins Mike and Joyce for a conversation about Birt-Hogg-Dubé syndrome, one of several recently identified genetic causes of kidney cancer.
Jean is a volunteer with the VHL Family Alliance, providing support for others with BHD. VHLFA provides patient support for people with a number of genetic tumor conditions, including VHL, HLRCC, and BHD.
Jean shares her story of diagnosis — how she found out the name of the condition that was plaguing her — and how she has learned to manage her health.
Please join us for this conversation. You can contact Jean and others with BHD and other genetic kidney cancer syndromes at http://vhl.inspire.com or by calling 800-767-4845 ext 725, or by writing to bhd@vhl.org.
