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Joyce toured ten cities in September and October, speaking to groups of patients, family members, and physicians about Von Hippel-Lindau (VHL), Birt-Hogg-Dubé (BHD), and Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC), three genetic kidney cancer syndromes. Mike interviews her about what she saw, what she did, and what she learned.
Quick summary:
Sept 20-21, Ann Arbor, Michigan
Sept 28, London, England
Oct 5-8, Budapest, Hungary
Oct 10, Oxford, England
Oct 12, Cardiff, Wales
Oct 13-15, Belfast, Northern Ireland
Oct 17, Dublin, Republic of Ireland
Oct 23, Nottingham, England
Oct 24, Birmingham, England
Oct 27, Manchester, England
For more details, see http://www.facebook.com/vhlfa/events
See also Blog Posts en route at https://powerfulpatient.org//blog
